Monday, June 4, 2012

after the wedding dance

"Even in laughter the heart may ache, and the end of joy may be grief."  
Proverbs 14:13

 I'm pretty sure we had one of the most precious moments with our daughter ever tonight.  All afternoon, she pranced around our house in a pretend wedding dress that our neighbor gave us.  She loved talking about Gran-D's wedding (my grandmother that got married last week)...and then started talking about wanting to dance with Dada.  She was so excited to wait on the driveway for Chris to get home.  The second he drove up, she ran to him in her little wedding dress and asked him to put on his wedding suit and dance with her.  If you know Chris, you know that he jumped at the opportunity (his suit has been worn less than 10 times and he loves his baby girl).  He dressed up...she grabbed some fake flowers and stuffed them in his coat pocket like a boutonniere...and headed to the backyard.  I turned on music and they danced.  All I could think about was how amazingly blessed she is to have Chris as her daddy.  No one but me knows how much he sacrifices and gives to us on a daily basis.  Ya'll would be blown away.  He loves her with a crazy, fierce love and would do anything for her.  He is what a daddy is supposed to be like.  

But, like most of our precious Eliana's days...her little brain went into a panic mode about 15 minutes after this special moment.  We aren't really even sure what started it...we hardly ever do.  You should just know that she lost it in every sense of the word.  The intense rages have been coming back...and it is not her fault.  Something isn't clicking right in her brain or her meds are wearing off too soon.  I can't explain the helplessness we feel when she is this out of control.  Tonight, we have been desperate for the Lord to heal her little body.  Emails have been sent to the doctor...and prayers have been said.  Chris and I just stared at each other, and all I could do was repeat this verse out loud.  I may be declaring it our theme verse for our family.  "Even in laughter the heart may ache, and the end of joy may be grief."  This is our life right now.  There are moments we laugh our heads off at our funny girl, and there are moments I am crying hysterically in bed over my chronic illness.  There are days we can all do something together as a family with no anxiety...and then there are days she only can handle being around one of us.  There are moments I can get the energy up to go to Target...and then there are days I can't get out of bed.  I am so thankful for this glimpse of our precious girl tonight, but I ache over wanting her to feel whole.  I know the Lord knows it all...and that brings a lot of peace tonight.  Love you friends. 


Mamita J said...

That precious moment is a glimpse into the real Eliana and it is the thing you need to hang on to as hope for her future. I'm so sorry this is so hard for you.

Heaven Sent Hatians said...

Praying with you daily! I can't say I know how you feel, I can only imagine and am overwhelmed with compassion for you! I pray you can continue to find God, to feel His warm embrace around you and that you continue to give Him praise. You are an awesome woman of God, keep praying, keep holding on, His promises are real and they are meant for ALL of us.

Lainie said...

My heart aches for you and precious Eliana. Prayers continuing daily...

Bekah said...

You precious family....I long for healing to be yours. We think of you daily and murmur prayers when we don't know what to say.

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